If you have a digital copy of this book, you will find all the resources are linkable directly from the book itself.
Here are the footnotes and additional resources found in You Bet Your Life! The Top 10 Reasons You Need a Professional Patient Advocate by Your Side.
2 DIY = Do It Yourself
3 (There it is. I always wanted to use the word “obfuscation” in a book I wrote. Check that one off the list! To obfuscate means to confuse or make something unclear.
Please note this study is from 2011. More recent studies pronounce the “July Effect” to be negligible on death rates. However, no studies, to date, have measured the number of medical errors in general during the summer (which may not have caused deaths) and logically new doctors would be very apt to make mistakes. Regardless, an advocate can be sure you have only a solidly experienced doctor helping you.
6 Invisible Risks, Emotional Choices — Mammography and Medical Decision Making (Lisa Rosenbaum, MD) published in the New England Journal of Medicine, 2014
Emotions and Health Decisions (Ferrer, Klein, Lerner, Reyna, Keltner, from the National Cancer Institute, Harvard University, Cornell University and UC Berkeley) published by Harvard University Press, 2015
10 “Comorbidity” means two or more diseases present at the same time, like diabetes and heart disease, or allergies and high blood pressure.
11 As of January 2015, Medicare began reimbursing $42 per patient for care coordination. In a doctor’s world, that’s not even enough to dial the phone or send an email. There is no reimbursement for patients who are not on Medicare. http://www.medpagetoday.com/PublicHealthPolicy/Medicare/47275
12 A New, Evidence-based Estimate of Patient Harms Associated with Hospital Care, John T. James, PhD, Journal of Patient Safety, September 2013
14 In 2011, the healthcare lobby successfully changed the name from “never events” to “serious reportable events.” That doesn’t change the errors they are.
17 This was my case. I was diagnosed with lymphoma, but in fact, did not have lymphoma. No alternative diagnosis has ever been determined or offered.
18 From the AHRQ: http://www.ahrq.gov/downloads/pub/advances/vol2/Schiff.pdf
19 Read the disturbing story of Dr. Michael T. Clarke, who is still performing surgery every day. http://www.syracuse.com/health/index.ssf/2015/05/syracuse_doc_accused_of_slapping_patients_fined_10000_ordered_to_get_therapy.html
21 In some states, the rules are changing for out-of-network coverage that results from these kinds of scenarios. In New York, it’s called the “Surprise Bill” – meaning, patients should not be responsible for those surprises. http://consumersunion.org/surprise-medical-bills/
23 It has been alleged that some hospitals reward their billing departments for padding bills when those bills get paid. I have never been able to corroborate that, but it would not surprise me.
24 We should note there is a great deal of crossover between these two directories. Most advocates are found in both directories. We should further note that as of mid-2015, there are no more than 250 private, professional patient advocates currently working with patients. If you live in a larger city or population area, you’ll probably find advocates to help you, but you may struggle if you live in a less populated area.
26 These questions can also be found here: http://advoconnection.com/hire-a-patient-advocate/#interview
27 There are two codes in existence. Members of NAHAC are required to subscribe to NAHAC’s code prior to joining at www.NAHAC.com. Find the most signatures at the Health Advocate’s Code website: http://HealthAdvocateCode.org where you will also find the code written out in full.
Directories of Patient Advocates
- What Services Do Patient Advocates Offer?
- How to Interview and Choose a Patient Advocate
- Patient Advocates and Navigators, and the Allegiance Factor
- Are Patient Advocates Certified or Credentialed?
You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve)
If you are interested in becoming a professional advocate yourself:
Resources for helping you get started: www.HealthAdvocateResources.com
The Alliance of Professional Health Advocates: www.APHAdvocates.org